Plot Twist, trying something new

Brad Update:

Doctor is stopping chemo. He said the progress has leveled off and wants to try radiation beads (Y90) in his liver. Upon review of the MRI he is still not a candidate for surgery. We are waiting for a call from hospital to get him scheduled for the beads which is two out patient procedures 4-6 weeks apart. They do one lobe in the liver at a time. At about 6 weeks after the 2nd one they’ll scan and see how things look. We are celebrating getting rid of chemo symptoms for a nice little stretch. Please pray for his hands and feet to recover from neuropathy (numbness) and his taste buds to return along with his appetite. Down the road we could restart chemo but for now they are focused on targeting the liver and continue to make progress. Of course all of this will be scheduled around baseball and soccer. We have 3 out of town weekend trips for soccer in a row then 3 in June so we don’t have time for cancer!

We had an amazing Easter weekend celebrating Russell’s confirmation! We are beyond blessed, beyond proud of these brave kids of ours and focusing on positive aspects of this journey while asking God to show us his plan and help us be obedient in trusting him fully.

T-minus one week to go

*edited

I’m adding this link to a talk by Melody Ross.  God led me to her classes 9 years ago when I was in the darkest hole EVER and her Brave Girls Club literally saved me!  I did an art therapy class and it filled up my emptiness and helped me to find myself again.  ANYWAY, I seek her out because everything she creates is GOLD!  It is unique, it is therapeutic and really helps no matter what mind space I’m in.  Look around her YouTube channel and watch what looks interesting, I am listening to this one today to help ward off my pre-chemo and pre-doctor appt anxiety.  Thank God it is Easter weekend so I can just float around in my faith with everyone and try to push out that anxious feeling that creeps in.  https://youtu.be/YhstYz9_6xY

The reason this blog was abandoned was because of my crazy kid schedule and remains true! Brad is feeling good, bloodwork has been good. His colonoscopy was awesome with no evidence of tumor and he will have an MRI of his liver on 4/18 to get better picture of how it’s looking. We are hella busy with all the kids stuff…baseball, soccer, prom, KU events…no time for cancer actually! Prayers would be much appreciated for Russell as we celebrate his confirmation this weekend and for our appt on 4/22! Happy Easter! He is Risen and never forget God has an amazing plan for you! ❤️

Cruise Control with a few Pot Holes

Last Spring Break Hurrah watching the Jayhawks

Happy Spring everyone! Woah we’ve had a doozy of a Winter and are so ready for warm weather! We had a relaxing Spring Break which started at the Sky’s cabin and ended with a FamBam Jayhawk adventure. Thanks to generous friends I had my own Spring Break in New York City and I have to say my first trip could never be duplicated! It was unreal! We’ve been so fortunate to be gifted some really big gifts since Brad’s diagnosis and this is definitely one for the record books! I came home filled up and ready to take in our notoriously busy Spring/Summer and a big appt with our Doctor.

Scans always trigger stress…it just does…we tell ourselves there isn’t anything major that will happen because we know they are just to check on success and that has been consistent with every follow up scan.  Brad’s CT showed continued shrinkage in his liver which is always great news.  They decided to do a colonoscopy to get a better look at the origin tumor and it literally has melted to a normal looking colon texture.  So wild and wonderful!

On 3/25/18 we met with Dr. Pendergrass and he is very happy with how things are progressing and responding but did say that liver is the issue and ordered a MRI to get a better look at where the tumors are and if there is becoming an option for surgery.  The challenge is they can’t just pluck out all of them and there are in both sides so they can’t just but off the spot.  The great thing is that if the colon tumor melted as it did these tumors could keep shrinking as well.  We are ONLY 6 months in from diagnosis as of 3/25 and 4/3 from first chemo treatment.  That is so early in cancer treatment and Brad has really come so far.  He is pretty much on cruise control for the next 3 treatments and we will meet after the MRI to see what he thinks about that.  We moved treatment to Mondays which worked out pretty well so far.

Seems like each month brings new side effects and this month we’ve been dealing with adjustments to the diabetes diagnosis and meds.  Brad’s bloodsugar dropped to what is a more healthy level but he felt bad which is a strange catch 22.  So really what the goal is to manage it and bring it down but not get too strict.  He needs a certain amount of carbs to help cushion all the meds he’s taking and will hopefully get used to the ups and downs of that blood sugar.  What is the STRANGEST thing is this man was walking around with a liver that filled his chest… full of lime size tumors, blood pressure at stroke level in the 190s, pre-diabetic blood sugar and walked around like everything was fine until out of the blue he started feeling bad.  His weight, blood pressure, blood sugar and blood work across the board is looking so good but obviously with all the meds, chemo and everything going on in his 6 foot test tube body he doesn’t always feel all that great.  I just wonder…is it mind over matter?  He believed everything was fine and blew off any symptoms he felt and never complained, always gets up early…I call him the robot because he just doesn’t slow down very often.  He has a very strong ability to ignore anything that is off but seems like blood sugar is one that hits him pretty hard. This weekend was rougher on him but it was ok because baseball got snowed out and cancelled so we had a slower weekend with time to get organized, clean up the house and get rested. He felt pretty puny on Sunday so I declared it a recliner day for him to relax.

Thank you for your continued prayers.  We are gearing up for some crazy calendar juggling and ALL the family is coming for Easter to celebrate Russell’s Confirmation. I’m super duper excited!  I LOVE when all of my siblings, cuzzies plus all of the kids’ grandparents can be together at the same time. What a huge blessing!  I am beyond grateful for all of them setting aside their own crazy schedules to gather together.  It will be a glorious Easter celebration!

Sidenote–we survived another Touch of Silver Dance Team tryout week for Whitney.  It is always so stressful because we want all of the girls we know trying out for the first time to make it but it is a very competitive squad.  Some made it, others didn’t.  We are excited to get the new season started and it will be kicked off next Tuesday.  Senior year for Whitney is coming in hot!

Russell’s baseball team won their first tournament of the season by a long shot so we are officially bumped back up to AAA.  We have a great team, great kids, great parents, I’m so excited for the season!  There were a few kids including Russell with some doubts about their abilities going into the season and the big success erased any doubt and really bonded the team together.  Brad and Russell were in their element and I absolutely enjoyed watching them enjoy every second.  It was cold but honestly I don’t even remember that part.  Hoping for gorgeous weather the rest of the way!

Prayer requests:

Carter has been struggling with stress at school.  I’ve been trying to help him get some extra help to get over the hump but Lord Jesus I hate to see him stressed out! Please lift him up.

Brad has some nagging symptoms that have cracked his armor.  Please pray for these to resolve and for him to feel tip top shape and feel as good as his blood work has been showing on paper.

Whitney and Russell need some extra luck and prayers to finish strong with their grades.  They have some high 80s which they know drives mom crazy!  If you are gonna get an 88 you might as well get a 90!  Am I right?!?  I know they are both trying so I don’t bug them too much.  Whitney has her Proms to distract and Russell has practice or a church event every day with no breaks so he’s a busy guy.

Brad and I can both use prayers for our focused and successful results at work.  Both of us are so busy but being in sales means we are always playing the odds to be successful and going into the busy Summer we are hoping to celebrate our successes.

Above all we feel so much love, we have been given some incredible gifts over the last six months to help us keep life as normal as possible and for that we can never say enough thank yous.  My recent New York trip was a trip of a lifetime with my HS bestie and while I was tentatively nervous it was the most amazing time spent! Her husband was so generous to give us the opportunity to enjoy the city and each other.  I still can’t believe it really happened! I walked in the New York City St. Patrick’s Day Parade as the FIRST THING I DID on my first day! I mean who does that besides Ferris Bueller?!?! Oh and then followed it up with the Big East championship at Madison Square Garden! I mean holy wow!

 

Focus on Happy and please forgive my Mood Swings

We met with Big Nanner today, Brad’s beloved Nurse Practitioner.  She almost mesmerizes him with her excitement that he forgets to listen to what she says.  Her enthusiasm gives us comfort and she is so positive in her praise for great blood work, says he looks good, she confirms the fact that he “feels fine.”  Today opened the door to changing things up so that he can feel as good as possible.  For instance, he’s had hand and foot pain that we’ve narrowed down to being from the 5 FU and not neuropathy.  She gave him a cream and cut back on the 5FU dose by 10%.  She also said this symptom will get worse when it warms up which sounds kind of serious since baseball and soccer seasons are fast approaching.  She told him he doesn’t have to power through this stuff, there are ways to make him feel better!  yay! Praise Jesus!  This is what I’ve been wanting to discuss for awhile without being perceived as “giving up.”  So thank you to everyone who prayed for what was on my heart the last month…quality of life vs fighting hard.

As for the scans, there has been additional shrinking of the masses in his liver so the chemo is working.  There are still too many to narrow down to the option of surgery and would only consider that if there were a few that were growing really big and they needed to be removed.  Now it seems like they are just kind of there like a heart disease or some other kind of chronic disease that you manage.  His blood counts are great in every area and we are just getting started to monitor his glucose. Brad is having a colonoscopy next Tuesday to get a better look at the colon tumor and decide if it makes sense to remove it.  What people keep asking and pushing for surgery don’t consider is the science behind cancer surgery.  It is all about margins, pre and post conditions of the organ you are cutting on and what else is in the body.  There has to be a means to an end and if it is cutting to be cutting I’m definitely not on board. {I don’t for one second think our doctors cut to cut but I get the question of “what about surgery” and that isn’t my favorite option}  The doctors would also weigh the risk of 6 weeks off chemo to prepare for the surgery.  When Brad missed his chemo in December he started to feel “cancery” and *seemed* to be heading back down the path he was on when first diagnosed–weak and sickly.  The thought of leaving his body unarmed to be attacked by the cancer without any chemo for six weeks scares me.  Secondly,  what does cutting a piece of his colon out mean.  Will it mean a colostomy bag?  Will it mean him in the hospital for awhile then bedrest missing his favorite season of the year?  Could it mean other things will come up and be more problems to deal with?  Our doctor and team will evaluate his overall health and if it will improve post-surgery.  I’m not even close to being medically trained/educated but I’m here to tell you Brad Woods does not want and part of any of that!  The man doesn’t even want to commit to a Halloween costume that he can’t immediately take off.  He does not want to LOOK, FEEL or ACT different.  His current health is good, he’s managing his side effects, blood pressure is so much better and our new adventure of diabetes is starting.  His blood work looks good, he feels good, he can sleep away a lot of the side effects.  I have faith God and the doctors will figure out his path and I’m voting for a Hard No! haha!  I think you all know where I stand.

Who knew Cancer lingo had some PC to go with it? I’m learning that “you look good” is an interesting comment. It kind of has a back handed tone of insinuating the treatment must not be that bad…impaired to others who look very sick. “You can beat this” “fight the battle” “how many more treatments” are all hard phrases to process when your cancer was deemed inoperable and incurable at the start. Anything can happen and we will always keep hope alive but it’s just tough for those concepts to be considered the only success. For people trying to live a “normal” life during treatment of Stage 4 cancer the battles daily are much more real. Brad worked 45 hours this week and 5 were unpaid to try and serve his mortgage customers. That was a huge victory the week of chemo! News of tumors shrinking by a centimeter is a big win 5 month into treatment. Winning a battle with insurance to process one EFFing claim so our prescriptions will be free/covered…now that’s a win! Making it through an entire weekend of a Dance State Competition without having to say no and stay in the hotel is a victory. Sometimes being cancer free isn’t really the focus or at least not the daily focus. There are weeks where we both don’t have a single bit of energy left to empty the dishwasher or make a sandwich. Brad says he is “real tough” and he is getting tougher by the week.

Thank you for your prayers. They mean a lot!

My heart today

I see you smile and your true joy.

Your bright face in the morning gives me hope.

I see the tear roll down your face and I sink.

What are you thinking boy?

Are you tired of this battle God has given you?

I see our children happy and am relieved.

We can do this somehow.

What is going on in there boy?

What are you thinking about?

I forgot you had cancer and it was bliss.

I feel so strong

And then I fall apart.

What if I can’t do this?

What if you leave without me?

Well I will figure it out, don’t worry.

I’ll make it work somehow.

Out of the blue our angels step in.

Literally when I feel like I’m going to burst.

They show up and take off that rock that makes me feel like I can’t breathe.

I see the separation of realities, yours and ours.

I’ll fight what you are fighting our whole lives.

What are you thinking boy?

Are you tired of this battle God has given you?

If you leave I’ll love them double for you.

I’ll never let you down.

I’ll never let them down.

Quick Update–#10 and 3/5 Scan

For some reason the last doctor appointment felt extremely stressful.  It ended up being a quick check in, doc said everything is looking good on his labs and the next scan is going to be on 3/5 then treatment #11 on 3/6. Brad was also put on insulin for diabetes.  The doctor said he was likely pre-diabetic and the stress of the chemo threw him into full diabetes. Brad’s hands and feet hurt for about 3-4 days pretty bad after treatment. This is from Oxaliplatin.  The only way to relieve it is to stop the giving that medicine in his cocktail and he doesn’t want to do that.  When we talk to the doctor next I’m going to ask him if there are options regarding only having it administered every other time or something to help lessen the accumulating affects.  Baseball season is going to be a struggle if he can’t walk and use his hands.  He says he’s “real tough” so in typical Brad style I’m sure it will have to get unbearable before he’ll agree to change things.  Nothing major came from the appointment but geez we stressed ourselves out on that one.

We had a fun Valentine’s Day and cracked up exchanging gifts.  Brad took me to a new Thai restaurant on Valentine’s evening and it was really good but his food was way too hot so he was sweating, crying and beat red!  He liked it all the same.  He also is very excited about getting handicap placards for our cars.  That will be so nice to get him through the rest of the Winter and save his feet from long walks getting to our kid stuff and into work when he goes.  With such a brutal Winter we’ve been so glad he can work from home.  His breath is taken away, face and hands frozen and hard to breathe in extreme cold.  It is better for his neuropathy to just stay inside and not risk getting frozen to the bone.

Brad’s very sweet card to me.  I’ll save it and read it when I need a little extra strength.
GI cancer means…more… farts…so this was completely appropriate and made him laugh/cry.

Please pray for his medicine to keep doing it’s job and for his scans to give us some guidance for the path that will take us through the Summer. We are really looking forward to lots of fun sports trips and adventures.  Brad doesn’t want to hold us back and will be at everything.  I don’t want to rush time to Summer because that will mean Whitney’s Senior year is quickly approaching and UGH that is just is too much.  I’m excited for what is in store for her because she’ll participate in a medical career focused program and all the fun Senior milestones.  I push and pray for all the kids to try their very best in school.  It is way too easy to get distracted so I “nag” and plead for them to work hard and hope for the best.  Hoping for a successful semester for them all.

Thank you for your prayers, they lift us up on the darkest days.  I’m feeling light and airy today so this is a good day to write 🙂

img_0634
We will DIY these @helloheidiwallart signs for their rooms.  They loved them!
Guilty!  We tend to give each other things we want for ourselves…

Go Chiefs!

Brad is not a jersey wearing sports fan but decided to order one online for the Playoffs. So far the notification says delivery will be some time in February. So his daily joke after he checks the mail is that his jersey still hasn’t come…too bad but hopefully it will be enjoyed when we celebrate an amazing season!

We enjoyed a lovely breakfast the morning of the AFC Championship game and before Carter’s send off back to KU. I think he had a good break, his tank got filled up, he seemed much healthier and excited to get back to his friends. We have high hopes for good grades and good news from at least one internship application.

This week will be chemo #8. I expect a worn out dance dad but hope he will get to see Whitney dance at least once this weekend at her competition. Our schedule is going to ramp up fast so I just hope we can keep all the balls in the air. I’m feeling hopeful but also a little anxious. The cure for any worry is cheering for our kids and we have lots of that coming up! Can’t wait!

Brad and I enjoyed his company’s holiday party this weekend. It was nice to see all the people who support him and mortgage people are always a fun time.